Seizing Life: Navigating Epilepsy - Lauren's Journey
A program inspired by Lauren Panko's journey with epilepsy, from diagnosis to management, focusing on work-life balance and support systems.
Program Modules
Understanding the Initial Diagnosis
Explore Lauren's initial experience with her first seizure and the diagnostic process, including the emotional impact and the importance of seeking a second opinion. This module will wrap up with a summary of key takeaways and a brief self-assessment.
Reflect on the Impact of a First Seizure
DAILYReflect on the fear and uncertainty Lauren experienced, and consider how support systems can help during this challenging time. Journal your feelings.
“That first seizure was tough... a lot of embarrassment and a lot of fear that I had pretty immediately.”
Research the Importance of a Second Opinion
DAILYResearch the benefits of seeking a second medical opinion, especially in the context of complex or uncertain diagnoses. Find 3 credible sources.
“After I saw the initial neurologist after my first seizure I knew that that was not a neurologist I needed to continue with so I did go and look for a second opinion”
Navigating Epilepsy in the Workplace
Learn strategies for disclosing epilepsy to employers, requesting accommodations, and maintaining a successful career while managing the condition. This module will conclude with a personal action plan for workplace management.
Develop a Disclosure Plan
DAILYCreate a plan for disclosing your condition to your employer, including who to inform and what information to share. Consider legal rights and protections.
“I was very open with my hr representative with my boss and with a couple of colleagues...that truly has made all the difference.”
Identify Potential Accommodations
DAILYBrainstorm potential workplace accommodations that could help manage your condition, such as flexible hours, adjusted workload, or a designated safe space.
“what can we do to help and they blatantly asked for that and I said you know one of the things that I would love your help with is maybe looking at a regular uber or lyft service”
Lifestyle Adjustments and Support
Explore the impact of lifestyle factors like sleep, stress, and diet on epilepsy management, and learn about available support systems. This module includes resources for breaking bad habits and establishing healthier routines.
Prioritize Sleep and Stress Reduction
DAILYImplement strategies to improve sleep quality and reduce stress, such as establishing a consistent sleep schedule, practicing mindfulness, or engaging in regular exercise.
“the biggest pattern that I've seen that I believe are my personal triggers are lack of sleep so sleep deprivation that hyperventilation that that comes about and then stress as well”
Connect with Support Groups
WEEKLYResearch and connect with epilepsy support groups or online communities to share experiences, learn from others, and build a strong support network.
“a lot of research a lot of conversations and support groups”
What You'll Accomplish
- Understand the process of epilepsy diagnosis and the emotional challenges it presents.
- Learn strategies for managing epilepsy in the workplace, including disclosure and accommodations.
- Recognize the importance of lifestyle adjustments and support systems for living well with epilepsy.
- Develop resilience and a positive outlook on life despite the challenges of epilepsy.
Full program access + updates